Went to the hospital this morning to have my blood checked. I thought that was the plan. But we had a meeting instead. Which was … interesting.
As it turns out, a chromosomal analysis of my tumor cells had revealed that I actually suffer from T-cell lymfoblastic lymphoma (not Peripheral T-cell lymphoma, Non Otherwise Specified, as assumed over the last 15 months or so).
That means a change in regime: tomorrow, I will start a hospital stay for 5 days with chemo therapy (Nelarabine). I will get chemo on day 1 (tomorrow, Tuesday), 3 and 5. The next two weeks are chemo free, but I will need to get my blood checked twice per week at the hospital. Cycles in this regime are three weeks, so day 21 is like day 1 again. This continues for a few cycles, probably – also depending on how soon we find a stem cell donor.
(Did I remind you recently that you can help me or someone else by becoming a donor? Just think about how cool it would be if you saved my life. Or someone else’s for that matter. Becoming a SuperHero could just be a mouse click away…)
On the practical side of things, this implies quite a few changes… The Bad News: no family trips this holiday period. The Good News: better prognosis – which matters more in the long run😉
tl;dr I will not be in the office, but in the hospital this week…