Home…

I’m home.

After 20 days in the hospital, I arrived home yesterday. That was one long stretch of hospital for me – I know, it’s much worse for others…

On the physical side, this was a bit hard, but not that hard. I had eight doses of Asparaginase, a bit of other chemo and two punctures of my bone and two of my spinal cord. Sounds worse than it is. Really: the university hospital has great staff that works very gently to get you through the procedures.

It’s the psychological side that I found a bit harder to cope with: I was confined to my room for 20 days and in rather a strict way – no leaving the room at all for most of the time. Sounds easier than it is. Sometimes, it really felt like being locked up in a cell.

I’ve actually completely internalised some of the constraints: I was linked to a catheter in the hospital, dragging it with me from bed to toilet to water bassin to bed etc. Since yesterday, I’m disconnected but I still reach out for the device when I get up from a chair.

And I’m tired. Quite tired.

But I’m home. Can’t begin to tell you how much that means for me…